*Raising a Child with Hearing Loss*

I have been the mother of a child with hearing loss (my son Henry) for a little over 5 years now.  I still have an enormous amount to learn.  I am not the best source for technical information, nor can I make any decisions for anyone about what is best for their child.  Having a hearing loss in one’s family is an incredibly difficult thing to accept–in the beginning.  You have many decisions to make.  You have many emotions to go through.  There is no one perfect answer for how to “do” it. 

What I found when my son was diagnosed was that there was very little information available about what it is like to have a child with hearing loss.  What is a typical day like?  What are the painful things you go through?  What are the triumphs?  I wanted to know what it was going to be like, what it was going to feel like…but there was no one to tell me. 

So, I have compiled this listing of posts that deal with hearing loss on some level.  This is a work in progress, and I will be adding to it in the future, so check back now and then.  Henry tends to be ripe with good blog fodder!  Please don’t hesitate to get in touch with me if you want more information.  Contact me at:  dkkwhcs@yahoo.com.

  • Happy Little Stars  You don’t have to fix everything.  Some of the quirks are what make life beautiful.
  • On Being a Responsible Parent, Which Clearly, I Am Not  We all make mistakes sometimes.  Don’t let it discourage you.  Learn from it.
  • This Mama Loves This Baby  How I found a special way to connect with my hearing impaired child when I knew he couldn’t hear me.  Our bedtime ritual.
  • Hearing the Rain  What it’s like to see your child hear a sound for the first time.
  • Hearing Aids Do Have Some Advantages  Humor.  He figured out that he doesn’t have to listen to you if he doesn’t want to.
  • Boogers  This is by far one of the funniest stories about my boy.  In my humble opinion, of course.  He is just like any other little boy — he knows how to embarass me in public.
  • Language Sample  A little humor about speech therapy.
  • What They Are Missing  A more emotional look at having a child with a hearing loss.
  • 4 1/2  On letting a little boy just be a little boy for a while.   Not everything has to be a “language experience.”
  • Accepting the Truth  Coming to terms with the fact that my child had a disability.
  • The Invisible Disability  Feeling frustrated that I don’t understand what it’s like for my child.

For more information on Henry, go here.  I think you’ll find he is a beautiful, smart, sweet, impish little boy, not unlike any other.

About kristenkj

Laundry is my nemesis. And also dust.

12 responses to “*Raising a Child with Hearing Loss*

  1. Sorry for being OFFTOPIC … which WP template do you use? It’s looking stunning.

  2. I’m excited to find your blog. My daughter is five and has a moderate-severe hearing loss. I’m always looking for blogs to add to my resource page.

  3. Brenda Booth

    Thank you for making this page. it makes you want to meet henry. we just found out about my lizzy,

  4. Amy

    My husband, son and daughter are all hard of hearing. My son loves his hearing aids because he doesn’t want to miss anything. My daughter on the other hand received her hearing aids earlier this year and has been teased at school so she doesn’t want anything to do with them. She is thirteen and tall so instead of sitting in the front of the classroom under the fm system speaker she wants to sit towards the back of the class. She said kids can’t see when she sits in front. She is so sensitive to the reactions of other kids and at such a tough age. My husband and I have tried to talk to her about it and come up with a solution but every time she gets teary eyed and upset. Any suggestions on how to get my daughter to understand how important it is for her to wear her hearing aids and not let the other kids upset her so would be a big help.

    • Brenda Booth

      Amy, when reaching things about all this stuff i found a implant by (Lrynex) i believe. they go into the ear, and stay in for up to three months. they are a flat fee of $1700.00 a year :(…… they can sleep, shower and swim with them in but they are only made for a high frequency hearing loss. most young peoples hearing loss is a low frequency like my daughter. also her ear molds are made of a skin tone color and you can hardly see lizzy hearing aids unless you look. but high school is one of my fears, but i have to look at it that all kids get pick on, some more then others and once she finds a way to cope she will be a stonger person for it. and remind her that high school is only a small part of life and it will be over soon :(

      • amy

        Thank you for the information. We have sat down as a family and spoken about different options for our daughter. She seems to be more and more comfortable with them. We have let her know that our main goal is to make sure she is comfortable and happy while at the same time keeping the importance of hearing clearly in the classroom one of her priorities. She likes the options we have come up with from the internet. Even though we do not live near anyone who has the same situation as far as we know, she has been speaking with other kids on the net.

  5. Kassidy

    Thank you for sharing this story! I’m a 17 year old girl with mild to moderate hearing loss in both ears with which i was born. I stopped wearing my hearing aids when i was in 7th grade because when i was younger i had them made into neon yellow and blue which i came to hate. They weren’t the best quality either but i still wish i wore them more because i have such a hard time with life in general. I would really love to get new, high quality hearing aids but we can’t afford them. No one understands how hard it is…I miss out on a lot, i embarrass myself 24/7, i mumble, i have a hard time socially, i don’t understand or know things that most people know because I haven’t “heard” it, school is tougher, and people make fun of me. I find it funny though too and i usually go along with it but sometimes people take it too far and it really hurts. My friends like to joke around with me about it so I’m ok with it for the most part. Even though there are disadvantages to it there is still a positive outcome. I feel like I’m a more caring and sweet person because I know what it’s like to have some kind of impairment. My advice to you as a mom: support Henry no matter what and show him that you care and are trying to understand his impairment, talk to him about it if he ever seems to get frustrated (sometimes he may not show signs of frustration even though he is), and last but not least, Henry is beautiful inside and out! I promise he will grow into a wonderful young man! Be patient and you will learn new things along the way.

  6. What an excellent way to be an inspiration and resource for others.

    Already it looks like your site is making great gains with connecting people with similar life situations.

    I am going to start looking at your links and do plan on checking back.

  7. I want to thank you for your blog posts on hearing loss. They really helped me out when Cooper was first diagnosed. Thank you! Your children are beautiful and I really enjoy your posts.

  8. helen renwick

    Thank you. My 12 week old son has just been fitted with hearing aids. And while I was fairly “cool about it” according to my friends, I am finding the day to day issues and emotions more difficult than I’d like to admit. It’s great to hear others’ experiences and to hear that you dont have to be supermum.

  9. Johnd822

    Merely a smiling visitor here to share the adore , btw outstanding style. Audacity, more audacity and always audacity. by Georges Jacques Danton. bdadaddgbegd

  10. Kathy

    My son is 15 years old, a freshman in high school, He has a moderate to server hearing loss in both ears. We only found out of his hearing loss when he was 3. I had taken him to a ENT when he was about 13 months old. His hearing test was just in the sound proof room with speakers on the walls and toys. The doctor said his hearing was fine, So we waisted a couple of years not knowing,
    He’s alway worn his FM system in school untill this year. But his grades are good so I’m not too concerned. The problem is, he has no friends at school. He was just hurt by a boy in school that he thought was his friend. The boy told my son he wasn’t his friend and to leave him alone in front of a group of kids, It brakes my heart,, My son told his older sister about it, He said he was stabbed in the back by someone he thought was a friend. He’s taking it hard. But the one good thing he said was, he knows he’s different and he’s unique and he likes that about himself. He doesn’t want to be like everyone else. I’ve been through dealing with teenagers before with my 2 older daughters, both we no hearing loss. No matter with an impairment or not, you always hurt when your kids are in pain, You feel soo helpless. But you support them as best as you can, We try to get him involved with sport and other activities. Just haven’t found the right one yet,
    Thank you for the blog It helps to read and know your not alone.

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